Monday, February 23, 2009

A fun day with the family



This past Sunday was a great day. We went to meet with family we have not seen in about 10 years. It was my Aunt's birthday so it was special for all of us. Peyton of course was giving us a hard time not wanting to go. Saying he is going to just stay in the bedroom and I thought fine if that is what you want. Well it turned out he had a blast. He met his Aunt for the first time and they hit it off. Every time I turned around he was with her, outside swinging. I am so blessed that someone in the family can get through to him. He is wanting to stay a weekend with her. That is amazing to me. I have to pull teeth just to get him to go stay with the Grandparents. WOW!!! She is a retired school teacher specializing in special needs. She has the magic touch. I had a wonderful weekend. I look forward to spending more time with them.

Monday, February 16, 2009

One Eye Kyle :(



Well I have been battling something with my baby Kyle. I had no idea that he was not seeing anything out of one eye. He got new glasses 3 months ago and at that point I was blinded about how bad this situation was. We are going through a patch therapy for 9 months and we are going to revisit to see if his sight is any better. What the eye doctor has told us is that the vision part of the brain did not develop on the left side. The muscles though did develop and that is a great sign. We are trying to trigger the brain to get that vision working. If it does not work, he outcome is grim. He just won't ever be able to see out of it. What has happened is the senses of the right eye has done all the work. I am so upset with this and feel so bad because when his eye is patched, his punishment is trying to play the game boy for 2 hours a night. Who wouldn't like that punishment?? Well when you can't see it is frustrating. He is struggling for the whole two hours. I want to just cry every night for him. We have been doing this for 4 days now, so we have a long road ahead of us. I will post pictures once his patch comes in. He chose a glow in the dark ghost. Right know we are putting band aids on him every night.